Resources

Valley Village

Resources

Listed here are a number of resources that we have found to be very useful over the years. We hope that they will be of help to you.

Developmental Disabilities

The Administration on Developmental Disabilities (ADD) serves as the key federal agency in the United States responsible for ensuring the implementation of the Developmental Disabilities Assistance and Bill of Rights Act and its regulations.

The American Association on Mental Retardation (AAMR) offers resources at www.aamr.org including publications, periodicals and abstracts from around the web.

The Association for Retarded Citizens (The ARC) maintains great resources about mental retardation at www.thearc.org including numerous fact sheets, position statements, and information regarding governmental affairs.

The California State Council on Developmental Disabilities ensures that people with developmental disabilities and their families receive the services they need.

The The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

Department of Developmental Services provides information on the Frank D. Lanterman act and explains the appeals, complaints and comments process. They may also be reached at 916-654-1987.

The Developmental Disability Resource Center, refers to itself as the unofficial guide to state developmental disability agency sites.

Family Focus Resource Center at the California State University Northridge.

Life Steps Foundation transforms the lives of people living with disabilities through in-home and center-based services.

The National Association of Developmental Disabilities Councils promotes national policy that enables individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community.

New Horizons profiles their special programs, including work-training.

North Los Angeles County Regional Center site describes services and events for people with developmental disabilities in the San Fernando, Santa Clarita and Antelope Valleys.

Scholarships & Financial Aid for Students with Disabilities

Therapeutic Living Centers for the Blind highlights their specialized residential and day care services for people with blind and multiple handicaps.

The Tierra del Sol Foundation profiles their day and vocational training programs.

Article on traveling with disabilities.

The UC Davis M.I.N.D. Institute maintains a site addressing the medical investigation of neurodevelopmental disorders including autism, cerebral palsy, Tourette syndrome.


Information About Specific Disabilities

Autism

The Autism Research Institute at offers very current information about autism and potential treatments and therapies.

Autism Speaks is dedicated to research, awareness, and advocacy.

Sleep Help is a site devoted to spreading awareness of sleep health and wellness as it pertains to autism.

Therapeutic Communication Through Music emphasizes that music therapy can help patients suffering from autism spectrum and other disorders.

Cerebral Palsy

The United Cerebral Palsy site includes information regarding innovative projects, advocacy and research pertaining to cerebral palsy.

Down Syndrome

The National Down Syndrome Congress offers general information on Down syndrome and a “New Parent Packet.

The National Down Syndrome Society offers comprehensive information about Down syndrome.

Fragile X Syndrome

The FRAXA Research Foundation site provides some good, basic information about Fragile X Syndrome.

The National Fragile X Foundation site provides very comprehensive information about Fragile X Syndrome.

Prader-Willi Syndrome

The Prader-Willi California Foundation offers a site with information as to the diagnosis criteria, treatment and progression of PWS.

The Prader-Willi Syndrome Association (USA) is a similar site with a national focus.

Spina Bifida / Hydrocephalus

The Hydrocephalus Association of San Francisco has an exceptional web site that includes a comprehensive list of resources.

Mental Health

The National Association for People with Dual Diagnosis offers some good basic information as well as a comprehensive catalog of publications and videotapes available for purchase.

Aging

The Alzheimer’s Disease Education and Referral Center is an excellent site on Alzheimer’s disease in general.

The Applied Health Sciences, University of Illinois at Chicago addresses the many issues complicating the aging process of people with developmental disabilities.

Specifically for Parents

The National Parent Network on Disabilities is especially useful for parents with school-age children.

Parents helping Parents is another site particularly valuable to parents with young children with disabilities.